Friday, April 21, 2017

76 Things #28: Wink, Wink


"Spasticity" is a common symptom of MS and the term covers a lot of ground, including:  annoying twitches, spasms, involuntary movement of limbs or painful tightness in my joints.

I'm frequently visited by this symptom all throughout my body but in particular on my face.  Lately, I feel like the spasms/twitches have upped their game in and around my eyes, cheeks and mouth.

Note:  For clarity sake, I can't really tell the difference between a spasm or a twitch.  I mean, really, it's kind of like a punch vs. a jab in the face.  So for purposes of this writing, I'll be using the terms interchangeably.

Trying to carry on a conversation while they are happening can be frustrating.  Often, the spasms can be so intense they overpower my thought process, leaving this line from Pink Floyd's Comfortably Numb echoing in my ears, "Your lips move but I can't hear what you're saying..."

That's the physical impact.  Then there is the mental/emotional.  I wonder, can you see my lip spasmingIs the twitching of my eye causing you to think I'm winking at youI am not an animal!

You know that feeling when you are having an important conversation...maybe at work with your boss, an old friend you haven't seen in awhile, or perhaps while on an interview...and you worry they are staring at the newly formed pimple you'd just discovered that morning?  Or maybe they linger too long looking at your mouth so you become concerned that you have something in your teeth?  Like a big piece of spinach?

Similar thoughts and concerns are cycling through my mind as the spasms wreak havoc on my face; I know I shouldn't be embarrassed by them, but that is easier said than done.

And these facial twitches and spasms are the #28 thing you might not know about (my) MS.




Tuesday, April 18, 2017

76 Things #24: Update

My sensation of having wet feet remains...but has now spread to my back and left shoulder.

It's as if somebody has taken a drink and splashed it against my back.  Nothing feels like it is dripping off of me, but half of my back and most of my left shoulder feel drenched.

I've had this new sensation for about a week now.  It's not constant but it is pretty regular.  Maybe it will disappear tomorrow, or perhaps even spread somewhere new.

Round and round it goes, where the MS stops, nobody knows...



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