Thursday, March 30, 2017

When You Have MS, You Can't Live Without...?

"...Adjust, adapt, and abide — that's my motto. It's not easy, and it's not without quite a few bruises, some tears, and a whole lot of needles (ha). Living with MS, I have no idea what tomorrow might bring, let alone 30 seconds from now, and I can't imagine riding this crazy roller coaster of MS without my family by my side.”

Read more of my answer here - and see what many other's with MS said as well.

And many thanks to Healthline for all the help they provide the MS community; I'm flattered they asked to hear my thoughts!


Tuesday, March 28, 2017

Pop Culture & MS #ChatMS

This information was gathered from our most recent #ChatMS.  If you haven't checked it out, yet, I hope you join us next Monday at 7 p.m. EST.

Below are responses, in random order, from just some of the questions discussed.

Favorite blogs:


@MSandMeRadio Online radio show every Thursday

Magazines related to MS:


Celebrities followed (on Twitter) specifically because they have MS:



If I missed anyone or anything and would like me to add it to the list above, please let me know.  Thanks to everyone for attending and I look forward to next Monday's #ChatMS!

P.S.  If you have any questions about how to join a #ChatMS, just let me know.



Monday, March 27, 2017

Drinking Coffee Prevents MS?

Interesting results from this study...although, with the amount of coffee/caffeine I drink, you'd think I'd already be cured of MS...let alone never develop it! :)

To read about the study, click here.



Sunday, March 12, 2017

76 Things #27: Getting Carded

Slurred words. Stumbling around from loss of balance or coordination. Impaired vision. Falling down.

Sounds like a night where you've had a little bit too much to drink?

Perhaps.  But these are also some very common symptoms of multiple sclerosis.

Over 100 years ago, these similarities led to MS sometimes being misdiagnosed as chronic alcoholism.  As I ponder that thought, it's both amusing and terrifying.  I also wonder, what will folks say in the year 2117 about our current knowledge and understanding of multiple sclerosis?

As I wrote in the #17 thing you might not know about my MS, waking up with bruises from my stumbles and bumbles is a common, almost daily event in my life.  Forgetting, slurring words and other cognitive confusion can happen with nary a drink in me.

Because of this, I carry around a laminated card in my wallet, courtesy of the National MS Society, that states I have multiple sclerosis and highlights some of the more common symptoms of MS that might give somebody - perhaps an alert police officer - the wrong idea about my current state.

Just sharing this seems silly and a bit surreal...but it's true, and the #27 thing you might not know about (my) MS.






Thursday, March 9, 2017

Don't Sweat the MS: MS Connection

My latest story is now posted at the National MS Society.  Please check out the link below and feel free to comment or share with others!

Don't Sweat the MS: MS Connection: Don’t sweat the small stuff. That’s how the saying goes, right?
But what if the seemingly smaller aspects of your life are actually the ones that drive your engine and spirit?



Wednesday, March 1, 2017

76 Things #26: In a Pickle

You know that awful sensation you get when you hear (or perhaps just think about) nails on a chalkboard?

I discussed in the #21 thing how touching certain items sends these uncomfortable shivers throughout my body.

But it's not just through touching - that spine-tingling, hair raising reaction also happens when I eat certain foods.  And unfortunately for me, it covers just about every vegetable I like! 

Here's the current list of foods that are on my no-no list:
  • Bell peppers
  • Broccoli
  • Green Beans
  • Snap Peas
  • Cucumbers 
  • Pickles
There is something about the texture of these veggies that is a catalyst for the dread felt throughout my body.

As I eat these foods, you can actually see the hair standing up on my arms!

I feel compelled to set an example of eating my vegetables for my children, so even when they are served at home, I labor through eating them.  Plus, I really enjoy these veggies and don't want to miss out on their health benefits.

As I do my best to eat my veggies, the wincing and expressions on my face as I try to ward off the impending chill can be theatrical to watch.

Life with MS:  It's a constant game of adjust, adapt and abide.  As a result, there is rarely a dull moment.  Even when you are just trying to enjoy a pickle with your sandwich.

And that is the #26 Thing You Might Not Know About (My) MS.

 






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