It hasn’t been easy talking to our children about MS. Even just teaching the correct way to pronounce mul-ti-ple scler-os-is can be challenging!
They ask a lot of questions and while it’s important for me to be honest with them about my health, I’m also sensitive to the beautiful innocence that comes with their age. It’s a very fine line to walk...
A resource that’s been helpful – an Introduction to the world of Multiple Sclerosis – has been the Keep S'myelin children’s newsletter, published by the National MS Society.
Our kids love to read but this newsletter isn’t part of their regular rotation…I think I’d feel uncomfortable if it was. I have a stack of them in my office that I can pull out when the mood strikes or a specific question arises.
The term “S'myelin” is a play on words…it refers to the myelin sheath, the protective coating around the nerve endings in our central nervous system. This “myelin” is damaged (scarred) on our brain and spinal cord, when our confused immune system attacks it.
Talking about MS is pretty heavy, even for adults, so I’m thankful that support like this children’s newsletter is available.
If you’d like to see an example of one of their issues…or, if you have MS and haven’t heard of this below, please click on the link below: