Tuesday, September 29, 2015

Proud to be a MS Champion!

I'm honored to have my MS story highlighted at San Antonio's Bike MS event. Bike MS: Ride to the River is a two day bike ride on October 3-4 and stretches over 159 miles from San Antonio to New Braunfels, TX...although I won't be attending the event, I'm very excited that my story will be part of it!

Tuesday, September 8, 2015

76 Things #14: Keep S'meylin!



It hasn’t been easy talking to our children about MS.  Even just teaching the correct way to pronounce mul-ti-ple scler-os-is can be challenging!

They ask a lot of questions and while it’s important for me to be honest with them about my health, I’m also sensitive to the beautiful innocence that comes with their age.  It’s a very fine line to walk...

A resource that’s been helpful – an Introduction to the world of Multiple Sclerosis – has been the Keep S'myelin children’s newsletter, published by the National MS Society.

Our kids love to read but this newsletter isn’t part of their regular rotation…I think I’d feel uncomfortable if it was.  I have a stack of them in my office that I can pull out when the mood strikes or a specific question arises.

The term “S'myelin” is a play on words…it refers to the myelin sheath, the protective coating around the nerve endings in our central nervous system.  This “myelin” is damaged (scarred) on our brain and spinal cord, when our confused immune system attacks it.

Talking about MS is pretty heavy, even for adults, so I’m thankful that support like this children’s newsletter is available.  

If you’d like to see an example of one of their issues…or, if you have MS and haven’t heard of this below, please click on the link below:


 http://38.media.tumblr.com/b0f2a75b3235e73ef18ace03fb7df8ac/tumblr_inline_n5vskzftfv1sdxtqg.jpg

Tuesday, September 1, 2015

My Ode (Haiku) to August

Time to celebrate
Thirty-one days of cruel heat
Is finally done

So Goodbye August
Can’t Say I’ll Be Missing You
Time for a new month

Hello September
My MS hopes you are kind
And provides relief

I miss being outside
Hanging with my family
Under the blue sky

So lets celebrate
The start of a new season
YES! YES! YES! YES! YES!


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