Thursday, June 4, 2015

When did you find out...?

A common question I've been asked is, "When did you find out you had MS"?

There's a short answer - May 13th, 2008 at The Mayo Clinic in Rochester, Minnesota.

But the longer - and more accurate answer - is considerably more detailed...and usually isn't suitable for a short, casual conversation.

A team of various doctors, eventually neurologists, far away from our home in Texas, finally solved my medical puzzle in May 2008 but the journey to diagnosis saw many twists and turns that date back at least a decade. So, when did I really "get MS"? That's a story all on its own...

 

How about yourself? 


If you are checking out this blog and have MS, how long was your journey to diagnosis?  Quick?  Over a few or many years?  Did one specific event happen that led to it or a variety of factors?

Would love to hear from you, please feel free to comment below!!


3 comments:

  1. Hi Michael. Thanks for posting. Just found this blog...I'm in the process of diagnosis myself. Turns out this summer is five years since the weirdness started, progressed, relapsed, changed, intensified, vanished. Repeat. I diagnosed myself with MS. My neurologist doesn't yet agree. Fornow I read, inform myself, and keep living. When I feel great I play hard, exercise, socialize, run the non-profit of my dreams. When the sludge shows up in my veins I drag through my days, waiting for the moment I can get to my sofa while my kids look at me like I'm nuts. This is quite the strange journey, I just take it a day at a time and listen to my body. Thanks for the MRI post. I had one yesterday and mercifully it was short. That mask is a killer! I will keep reading your blog so keep it coming. Thank you!

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    Replies
    1. Thank you for sharing your story, Angie.

      The path to diagnosis is a long and winding road. I was tested for just about everything out there and even had a misdiagnosis (Crohn's Disease).

      I'm not the typical face for MS, since women are typically diagnosed at a much higher rate than men, so I'm not sure if multiple sclerosis was ever seriously considered until my trip to The Mayo Clinic.

      Along the way, I had countless CT scans done on me....searching for tumors, etc. - but no MRIs. Once the MRI was done of my brain and spine, it started becoming pretty clear to the doctors at Mayo what was going on...

      Stay strong in your pursuit of finding an answer, it will arrive one day. Please keep in touch!!

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  2. Hi Angie Stryker.

    I've had three MRIs and I'm fortunate that I don't feel claustrophobic with them. I try to put my mind in another place and that works for me.

    You don't say how old your kids are. If they're young then explain things to them simply in concrete terms. If they're older then tell them things have changed and start asking them to help out. You'll be surprised. They'll probably grow up quickly and pitch in...with a few bumps along the way.

    Best wishes!

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