Wednesday, April 29, 2015

Train Roll On

Another IVIG treatment is over! And, as is tradition, I celebrate on Wednesday morning by playing "Tuesday's Gone" by Lynyrd Skynyrd.

On Monday and Tuesday, I'm at the infusion center - for about 5 hours each day - receiving my medicine.

The treatment leaves me pretty tired, messes with my appetite and causes some other flu-like symptoms (headache, nausea), which will remain over the next few days.

So "treatment week" isn't over...but as of Wednesday morning, the needle, IV and over ten hours of drip, drip , drip are finished for another 28 days.

So, for that, it's time to play some Skynyrd!

Friday, April 17, 2015

When asked why he enjoys volunteering for the Society, Michael, an MS blogger, points to his inspiration, "...when I...

Posted by National MS Society, Texas on Wednesday, April 15, 2015

Wednesday, April 15, 2015

Vertigo Island

My vertigo ride was up and running this weekend..
Meant to write this weekend but my schedule was thrown off by the return of my not so good friend, vertigo.
About a year ago, I had a very similar experience – I wrote about it here – my symptoms were so intense, I didn’t know if it was my MS, food poisoning or something even worse.

On a scale of 1-10, what I experienced in 2014 was probably an 11.  This weekend was something closer to a 7 or 8 but just as scary and unyielding in its timing.
Early Saturday morning, I was awoken by my son, asking if he could turn on his light to read (he’s an early riser, so on the weekends, we like him to try and sleep in until 7 a.m.)…it was a little before 7 and Angela was still out on a run.

I told my son he could turn his light on and as I sat up in bed, all I felt was spinning. 
As Vincent does, he launched into 20 random questions about sports, as I attempted to keep myself upright.

Did the Cubs win?
Daddy, who do you think is going to win the Stanley Cup? 
Can you print out the NBA Standings?
Vertigo was winning the battle of wills, so I told Vincent we could talk about it at breakfast and that Daddy needed a few minutes.

Vincent headed back to his room and I laid back in bed…I started thinking about last year, how terrifyingly awful that experience was and knew I had to try and get up, to fight back.
I didn’t make it far.

What should be a 10-15 second walk from our bedroom to downstairs living room ended up being a 2-3 minute slow waddle, using our walls as a helping friend to keep me upright, grasping the rails as I made my way down the stairs.
I grabbed my cell phone before plopping down on our couch and as I struggled to send a text to Angela, I was relieved to hear her open the door, returning home from her morning workout.

I’m feeling much better now, thanks to Angela nursing me back to health.  She helped me back upstairs to our bedroom that morning and by Tuesday morning, most of my vertigo symptoms had dissipated.
Now it’s back to writing….and making that pick for the Stanley Cup Finals! 

Tuesday, April 7, 2015

Today on the MS Connection blog, a father struggles with some tough questions around how his MS impacts his kids.

Posted by National Multiple Sclerosis Society on Tuesday, April 7, 2015

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