Tuesday, April 29, 2014

I've Got The Chills

Last week, my right shoulder area starting feeling a little off.  It's difficult to describe the exact issue...it wasn’t numb or tingly, two common (and almost daily) symptoms of my MS.  I could sense that area being touched; it just didn’t feel like my shoulder.  The best way to describe it would be to say that it felt desensitized to my touch.
If I felt an itch in that area, I could scratch for hours and still find no relief.  Slowly, this (lack of) sensation has spread to the rest of my arm, all the way to my fingertips.  Over the past week, I’ve had  this hard to explain “force field” around my arm.
My hand and arm are still operational but they're irritant to the touch, whether it be my own, my children or even my clothes.  You ever touch the surface of something...perhaps something stainless steel (like a refrigerator) or your fingers rub against the chalkboard the wrong way...and it sends a chill through your body?  My arm is that chalkboard and the chills are a persistent melody played throughout the day.
There is little control in the world of MS.  But that doesn’t mean I don’t try.  All week, I’ve constantly been opening and closing my right hand, trying to keep the circulation open.  Yes, it’s silly but that’s my way of telling my right arm to keep fighting the good fight.  Don’t give in to this disease; my competitive spirit refuses anything less.
So as I sit her in the infusion suite, getting my latest IVIG treatment, I’m worried my neurologist will recommend another steroid treatment….maybe this is the start of another relapse?  Or maybe it will just go away.  I’m hopeful for the latter.


  1. Well,you remind me my case. Something heavy on my chest woke me up.It was my hand, cold and senseless,incapable of any movement.
    it came back after a few min when i helped it move.I remember i had the chills for some days before and after,I also had the chalk dust feeling when i touched sth.
    My doc said it should be a 24 h event to be named as a relapse.But it will go away anyway.

    I found this video very helpfull;

  2. How eerily similar your situation is to mine! The "something is wrong with my right arm" bug must be going around. My symptoms actually started lower on my arm, spread to my hands/fingers. Symptoms were, as you articulately put it, a desensitized touch. But sometimes, small areas of more-severe numbness (tip of pinky finger, base of thumb) emerge and then disappear over the span of several hours. My arm also feels extremely heavy, requiring considerable effort to move it. And I also have a deep, nearly-continuous throbbing ache in my arm (that seems to get worse at night). Are you feeling any pain associated with your symptoms, Mike? I was thinking "carpal tunnel syndrome", but then my right foot started feeling exactly the same way (desensitized, heavy, deep aching pain), and the pain/desensitized sensation is creeping up my leg, now along my calf to the back of my knee. I've arranged for a doc appointment, to make sure it isn't a circulatory problem (like a blocked artery) or a pinched nerve in my spine. Do you and your doctor blame MS for your odd symptoms, or do you think there may be another underlying cause?

    1. Thank you for your message and story! Still not sure the cause of it....right arm and hand unfortunately still feel the same. My neurologist is aware and we are going to monitor whether it continues, spreads to my legs, left arm, etc.

      I do *not* have pain associated with it, though. That's important to point out. I certainly have pain associated with MS (mostly in my legs) but this latest development doesn't produce pain...just a very awkward feeling in my right arm and hand.

  3. Good luck with it, I know how irritating it can be, Ronald Reagan was president the first time I felt it!


    1. Ha! So it's been quite awhile then...and yes, I suspect this is part of my new "normal", too...


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