Wednesday, March 19, 2014

Law & Order: MS Victims Unit


This isn’t the original entry I was planning on sharing this week but it wrote itself after life was interrupted on Sunday.  Below is an annotated summary of my Sunday interlude. 


In the multiple sclerosis system, a chronic disease affects two separate yet equally important groups; the brain and the spinal cord.  Because of this, often it’s hard to tell the difference between MS and non-MS related events.  This is one of those stories.  Dun dun.

When is being tired not just being tired?  Often, in the world of MS, it’s hard to exactly know where the tired ends and the MS begins.  Am I exhausted from MS Fatigue or did I just not get enough rest the night before? Did I not sleep well because of some environmental factor (room too warm, kiddos waking up during the night) or because one of my regular MS ailments (pain, spasticity) kept me up? 

Which brings us to Sunday morning.  I woke up around 6 and knew instantly something was wrong.  The entire room was spinning (and no, I didn’t have any Jäger shots the night before!)…vertigo, or some form of it is pretty common in my world.  But this was different. 

I began to sit up and instantly felt like I was going to pass out.  Literally.  Everything was going dark.  I fell back to the bed in shock and tried again to move and was hit with the same terrifying feeling of blacking out.

Angela heard me struggling and asked if something was wrong.  With everything spinning, a cold sweat beginning and feeling like the world was coming to an end, I couldn’t form a coherent response.  But, I knew I had to get up to use the restroom.

And before you stop reading, I won’t be going into any details because honestly, there are none.  I just had to go but I couldn’t *get* there.  Angela basically had to carry me…and all that motion caused me to feel even more seasick.

Was this a bad case of food poisoning?  Or was this MS paying me yet another visit? (Chung chung)  My stomach felt like it was at civil war, my head felt like it was rolling around on a boat and I couldn’t stop feeling like I was going to hit the ground and pass out.

After returning to our bed, I asked Angela to bring me a trashcan nearby.  Over the next two hours, I unceremoniously dry-heaved at a rather constant pace.  Blood vessels on my nose popped from the intensity and frequency of dry-heaving.  I couldn’t even hold up my head up...I’d rest my head against Angela and then she’d help prop it up above the trashcan, when needed.

And so the day went.  Yes, day.  I spent an entire day in bed even though it was impossible for me to find any comfortable position.  I had no strength and couldn’t even sit up.

By noon, I requested my Kindle to try and research online whether this was food poisoning or something worse.  Bad idea.  By this point, I had gone delirious and ended up diagnosing myself with some “exotic” condition.  I believe it’s called “fainting”.  Did you know there is a long, scientific term for fainting?  Well, I found it.  I was out of my mind, thinking this was some new affliction that was hitting poor saps like me.  I’m not sure if Angela shut off my internet access or if I just eventually gave up.

Angela fed me in bed.  Thankfully, it wasn’t from a bottle but I’m pretty sure there might have been a baby spoon involved.  I couldn’t lift my head to eat, the movement was too much, so Angela literally had to feed me by the spoonful.

She made me rice, I tried to stomach cereal and even half a waffle.  That was about all I ate for most of the day.  My nightstand was littered with bottles of water, Gatorade and Diet 7-up, each adorned with its own straw that Angela held for me so I could manage a few sips every so often.

It was a long day, I was in that bed for almost 12 hours.  When I finally managed to get up, I felt like I was floating on air.  But I couldn’t handle another minute just lying there, away from my family, so I forced myself to head downstairs to rejoin the living and let the kiddos know that Daddy was going to be ok. (They just knew Daddy was “not feeling well”, which unfortunately is a refrain they hear much more than I’d prefer).

So what happened to me on Sunday - was it food poisoning, MS….or both?

Meanwhile, life goes on.  But, will it happen again?  Next Sunday...next month…or was it just some awful luck related to something bad I ate the night before?  If only I had a few  “Law & Order” detectives to help solve this mystery.



3 comments:

  1. Hi Mike,
    I'm an editor with a soon-to-be launching website called TheMighty.com. Our goal is to share and tell stories about people overcoming life's challenges. I wanted to talk to you about featuring one of your blog posts on our site. Let me know if you're interested. You can reach me at megan@themighty.com or call me at 908-752-0335. Love your blog, either way. Hope to hear from you. Best, Megan

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  2. Hi Mike,
    I read your post and I experienced something similar recently. My husband passed me his "bug" of sick coming out of both ends. It's the first time I have dealt with an illness since I was diagnosed with MS at the end of last year. Just when that all knowing moment that something is coming up I ran (stumbling from room spinning) to the bathroom. It did not come right up, but the dizziness (like being extremely drunk) set in and electric shock like vibrations jolted thru my arms and legs. The next thing I know was my husband was trying to lift me off the potty as I woke and told him to leave me there as I was about to get sick. I do not know how long I was unconscious but it was probably only for a minute or two as he claims to have heard me make a strange noise and he came in to see and I was out. I called my neurologist the next day and she felt it was dehydration even though I had not actually gotten sick yet. It was scary and I fear experiencing that again without any explanation of what was happening or why.

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    Replies
    1. Thanks for sharing, Julie (and my apologies on a tardy reply). So far, it has just been a one time incident for me...I deal with vertigo on a daily basis but nothing as extreme as the above....and I hope to never face it again.

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