Tuesday, May 28, 2013

Comments/Musings

My apologies to those that have left comments over the past few months, I did not see them until now and feel bad for not responding, especially for those that asked questions. I'll be changing the settings of this blog so, in the future, I'll be notified when a comment is left.

Many thanks to all for your kind thoughts and please if you have any questions - keep them coming - I'm more than happy to answer!

I added a "musing" this past weekend and intend to continue daily/weekly musings (in addition to my contributions to the National MS Society Blog, published monthly), to help shine a light on my life with multiple sclerosis.

It's a disease that affects over 2 million people worldwide, of all ages, race, gender or creed and each one of us has our own unique story. I thank you for following me on my journey and hope you enjoy your time and most of all, continue to learn and expand your understanding of MS.

Happy Tuesday!

Sunday, May 26, 2013

Mike's MS Musings

Holiday weekend for thee, next treatment coming up for me.

That's the easy way out...feeling sorry for myself that first thing Tuesday morning (since Monday is a holiday) I'll be at the infusion center to start another two days of IVIG. My bones are cold and achy, a sign that my body is expecting its refill. I struggle to find the energy to play with the kids...or even shave. A loud noise here or a minor stressful situation there causes my vision to flicker on and off. Constant nausea. There is no position that is comfortable, pain relief medicine is useless and hot coffee provides no bump to my energy (although it does help a little, warming my body).

But it's Memorial Day weekend. A weekend to honor those that have fallen protecting our nation. Makes my aches and pains seem a little silly, no? But whether it is Memorial Day, Labor Day or any holiday weekend, the dark cloud of MS is always lingering nearby.

In school, career or even baking, I've always liked challenges. Why waste my time baking simple brownies when I can make sticky toffee pudding instead? So instead of wallowing in self-pity (which I admit, has its allure), I prefer to view all of this for what it is - a challenge. MS is taunting me to not have a Clark Griswoldian holiday weekend. To that, I say - bring it on.

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